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Brielle's Boston Photo Session and her TEF/EA Journey

Tuesday, April 05, 2022 | By: Sharyn Peavey

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Brielle's Latest Shoot Quincy Market & Her Journey with TEF/EA

This is Brielle. She has quite the story for her first years here. She loved the lights behind her at Quincy market. I captured this shot in the middle of our third shoot together. I am touched every time I see her. I like going into her world, she sees and experiences life differently than many children her age. Brielle is a child with TEF/EA, (she was born with two primary medical conditions affecting her esophagus and trachea, known as Tracheoesophageal Fistula (TEF) with Esophageal Atresia (EA). It was actually not difficult to photograph Brielle in the busy place of Quincy market and I can't say that would be the case for all children! We chose Quincy Market because we needed an indoor space that said Boston. Her window of available time for a shoot was during a cold rain. And as Trish said, Boston 40 degrees is colder than in Pennsylvania. I agree!


Coming to Boston means surgery for Brielle, visits with fabulous medical providers, quality care, hope, and a long drive but a worthwhile drive for her family. I am not sure exactly who at Boston's Children's Hospital gave Brielle's Mom, Trisha, my name back in 2019, but it is a custom now that I am used to, photographing them when they have their trip to Boston. As I am writing this blog post, Brielle is undergoing surgery to expand her airways and remove scar tissue from previous surgeries. Her parents are hopeful they will be able to take her home (to the hotel) tonight, no longer in fear that she will have difficulty breathing. I can imagine the relief.

We met outside the Starbucks at Quincy market on the corner of Clinton Street. It was a little chilly but I loved the puddles and the gold rooftop in the background. 

Brielle Loved the puddles too!

I never really care if kids look at the camera. It is their world I want to enter. Trish told me years back at our first shoot that eye contact was something that probably didn't happen. 

The fist bump is something I saw Brielle do with her Dad. Eye contact isn't important. There is communication going on continuously between Brielle and her parents.

Brielle has been practicing sign language for a few years now. Her latest moves she shared were rock out and touching her nose with tongue, with great effort!❤️

One photo Bill wanted was rocking Brielle like a baby. He said it drives her crazy but she will allow it for a little bit. 

Brielle gave me a few more minutes, I got this shot. Then she got her music on and said she was ALL DONE! It was an appropriate time, we had gotten good stuff and had a great time.

See Brielle's First Blog Post

I never posted her second shoot, it was November of 2020, and shortly after that I got Covid (horrible) and big life events happened. Not that life events ever stop, but some are bigger than others. I will share those images too, they are special. Just like Brielle!

Bill and Trish are expecting their second child. Should you have a loved one with TEF/EA,  Tracheoesophageal Fistula (TEF) with Esophageal Atresia (EA) here are resources.

 

For more information on TEF/EA please visit:

http://www.childrenshospital.org/conditions-and-treatments/conditions/t/tracheoesophageal-fistula
 
http://www.childrenshospital.org/conditions-and-treatments/conditions/e/esophageal-atresia
 
For more information on Tracheomalacia, Bronchomalacia, or Laryngomalacia (TM, BM, TBM, LM) please visit:
 
https://www.curetbm.org/
 
http://tech.childrenshospital.org/lp/tracheomalacia-ebook/?utm_campaign=FY19SILTEAT&utm_medium=social&utm_source=facebook&utm_content=trach%20e%20book
 
And for the more visual learners:
 
https://youtu.be/QJTg55eUYxw
 
https://youtu.be/ArURYRYYacU
 
 
For more information on Blenderized Tube Feeding and/or more insight into the hidden truths about Abbott and Nestle products as they relate to the tube feeding community, please visit: 
 
https://crunchytubiemama.com/
 
https://matthewsmanna.com/
 
And for the more auditory learners:
 
https://youtu.be/T24egTgklAw
 
https://youtu.be/TbPefTUJRrU
 
https://youtu.be/PMXbgyo6pAE
 

 

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